16 hours of sleep
goes a long way. Saturday night I slept 12 hours, then got up for about an hour or two and went back to sleep for another four hours. This made going to bed at a decent time on Sunday night a little difficult, but I managed to get almost 7.5 hours last night. I'm a new person. Well, the sleep and a very small dose of prednisone to jump start me. I hate being on prednisone, and I've been very lucky to be off it for years now. I take it only when my flare-ups are accompanied by fevers - usually a sign that my white cell count is very (perhaps dangerously) low. Even then I take 1 or two very small doses and make sure I get the (even more) necessary sleep. A note on low white cell count - a few years ago, I was having a flare-up with fevers, and I could tell it was a pretty bad one. I went to the doctor and it turned out my white cell count was below 1. This meant that my doctor was mandated to hospitalize me. I assured her that I just needed rest, but she told me that if I didn't check myself in - she'd send an ambulance for me. I checked myself in, and after a few days of near constant sleep (no drugs), my cell count shot up. The doctors had no idea what was going on or why I got better. I kept telling them that it was just a flare up and I needed some sleep. They did not believe me, but didn't have a better explanation - even after countless tests. So, I learned that getting rest early on key. Also, as great as some doctors are, they can't possibly tell me how sarcoid affected me nearly as well as I could tell them and myself. You have to learn to pay attention to yourself and your symptoms so you can notice a pattern.
Now is the tricky time, though. I feel so much better than when I was dragging on Friday and Sat, that already I am wanting to go for a run or something. I know better. I can't overdo it too soon. I can tell that I still need some additional sleep. I did lift weights last night - which I'm sure helped. Lifting weights is good because it's beneficial without the impact and stress. I am not even close to being a body builder or even noticeably toned, but I can't tell it's beneficial in many ways. I only wish I had been introduced to it earlier - apparently being on prednisone for a sustained period of time weakens your bone density, and lifting weights help build bone density.
1 Comments:
This is her mother. I have been watching her fight her condition with grace, determination, and stubbornness. When she was at home, we would watch her run herself into the ground. Then, when the the last performance was over, or the big test was past, we would basically tie her to the bed for a couple of days so she could get some rest. she's right. Enough sleep and balance with rest is key to staying healthy.
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